Bereavement Research Forum
Bereavement Research Forum
15. The circumstances of loss and bereavement associated with organ donation are
culturally challenging, especially the post mortem procedures on the body. There is a
need for public information and education about the procedures surrounding donation
and transplantation, i.e. the concept of death certified by brainstem testing; brainstem
testing; the nature of the donation operation (i.e. it is a careful surgical operation)
and, the appearance of the donor following the operation. The propriety of the
donation operation needs to be stressed in public education and in discussion with
16. Most individuals get their information about organ donation from television;
therefore, this may be a useful medium for public education.
17. There is a need for the individuals who facilitate the clinical care of donors and
their families (e.g. hospital managers) to be, themselves, fully informed of the
complex nature of donation events, and the resources needed to provide appropriate
care to relatives.
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Barber K. Falvey S. Hamilton C. Collett D. and Rudge C. (2006) Potential for organ
donation in the United Kingdom: audit of intensive care records. British Medical
Journal, 332, 1124 -1127.
Bellali T. and Papadatou D. (2007) The decision-making process of parents regarding
organ donation of their brain dead child: A Greek study Social Science & Medicine 64:
Dodd-McCue D. Cowherd R. Iveson A. and Myer K. (2006) Families responses to
donor designation in donation cases: a longitudinal study. Progress in Transplantation
16: 2, 150-154.
Haddow G. (2005) The phenomenology of death, embodiment and organ
transplantation. Sociology of Health & Illness 27:1, 92-113.
Human Tissue Authority (2006) Code of practice 2: Donation of organs, tissue and
_Code_of_Practice_2_-_Donation_of_Solid_Organs.pdf (Accessed 10.10.07)
Long T. and Sque M. (2007) An update on initiatives to increase organ donation: A UK
perspective. British Journal of Transplantation 2:2, 10 -15.
Long T. Sque M. Payne S. (2006) Information sharing: its impact on donor and
nondonor families’ experiences in hospital. Progress in Transplantation 16:2, 144 -
Sque M. Long T. and Payne S. (2003) Organ and tissue donation: Exploring the
needs of families. BODY www http://body.orpheusweb.co.uk/.
Sque M. Long T. and Payne S. (2005) Organ donation: Key factors influencing
families’ decision-making. Transplantation Proceedings 37: 2, 543-546.
Sque M. Long T. and Payne S. (2006) Exploring the end of life decision-making and
hospital experiences of families who did not donate organs or tissues for transplant
operations. Final Report for UK Transplant. February.
Sque M. Payne S. and Macleod Clark J. (2006) Gift of life or sacrifice?: Key
discourses to understanding decision-making by families of organ donors. In Sque M.
and Payne S. (eds) Current issues in organ donation and transplantation (special
issue) Mortality 11: 2, 117-132.
Sque M. and Payne S. (1996) Dissonant Loss: the experiences of donor relatives.
Social Science & Medicine 43: 9, 1359-1370.
Sque M. and Payne S. (eds) (2007) Organ and tissue donation: an evidence base for
practice. Open University Press, Maidenhead.
Sque M. Payne S. and Vlachonikolis I. (2000) Cadaveric donotransplantation: nurses’
attitudes, knowledge and behaviour. Social Science & Medicine 50: 4, 541-552.
Sque M. (2007) A dissonant loss: The bereavement of donor families. In Sque M. and
Payne S. Organ and tissue donation: an evidence base for practice. Maidenhead,
Open University, 59-81.
Sque M. and Wells J. (2004) Organ donation: Helping patients and families make
choices. In Payne S. Seymour J. and Ingleton I. (eds) Palliative care nursing:
Principles and evidence for practice. Open University Press, Maidenhead, 472-489.
Wells J. and Sque M. (2002) ‘Living choice’: The commitment to tissue donation in
palliative care. International Journal of Palliative Nursing. 8: 1, 22-27.
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Contact name and detail if you would like further information on this topic and
Dr Magi Sque, Senior Lecturer, School of Nursing, University of Southampton